Justin's HIV Journal

Thursday, June 1, 2017

Justin's HIV Journal: Justin at the END AIDS: The HIV Prevention and Outreach Summit in Philadelphia

Panel Discussion HIV in the News

Hey everyone, it's Justin from Justin's HIV Journal.  June is AIDS Education Month and I have some great news.  Philadelphia FIGHT, an ASO has asked me to join a panel for Philadelphia’s AIDS Education Month Summit on 6/7/2017 in the morning at the PA Convention Center.  The panel discussion will be around the subject matter of HIV in the media/news.  Right now, this is a hot topic and I will explain using parts of the e-mail that was sent to me by Philadelphia FIGHT.

“In this era of the twenty-four-hour news cycle, media outlets are always looking for new story ideas, and there are some great examples out there of important, in-depth and well-researched HIV news coverage, but as we know, today the coverage of HIV news can be sparse, and sometimes sensationalized (i.e. some of the coverage of the Charlie Sheen story revealing he is HIV-positive).  Our panel of media experts will share some examples of positive coverage and some inspiring stories about the HIV epidemic, as well as provide valuable tips and guidance on how to get your story told, and how to advocate for more of the types of stories you'd like to see.”

Panel discussions like these are really important because they start a dialog about HIV media can help and hinder our efforts to get to 0 infections.  I will also answer questions from the audience as well.  Panelist will consist of CBS-3 reporter & reported for KYW Radio Cherri Gregg, STI/HIV author, advice columnist and activist Justin B Terry-Smith, and CEO of Techbook Online & co-host of “Pushback” a social-justice podcast, Christopher “Flood The Drummer” Norris and moderator Chip Alfred Director of Development and Communications Philadelphia FIGHT Community Health Centers. Please check the flyer above for information and bios of the panelist and moderator. (10:30 - noon is the approximate time slot). 

Click on the link below for more information about the summit https://www.aidseducationmonth.org

Tuesday, May 30, 2017

Justin's Advice Column Just*in Time: So, you want to be an HIV Activist…

So, you want to be an HIV Activist…

There are several things that you should be aware of or put in place so that you can become a HIV activist. When I became an HIV activist I had to keep in mind that there are different ways for one to become an HIV activist. There is a virtual activist, who is more of a present-day phenomenon; this kind of activist uses social media such as YouTube, Facebook, Twitter, etc., to spread their message. There is the more traditional activist, who will organize a protest in numbers and bodies to put up picket signs and yell slogans. In this country and world, we need both and more allies to join causes even if it doesn’t affect them directly

Click here or go to the link below to find out the 
TOP 5 tips on becoming a successful HIV Activist

Saturday, May 20, 2017

Justin's HIV Journal: 12 Years infected with HIV. HIV Medications Complera vs. Odefsey

Hey everyone,

We are now Empty Nesters Good luck to both of my sons Lundyn and Tavis.  They are in separate cities adulting.  They are both good boys and now I can say, young men.  A part of becoming a parent is learning how to let go.  I’ve had to learn that it even though it was a hard thing to do I had to.  Being a Dad means everything in the world to me not only because I’ve helped raise two awesome individuals but because I’m letting them go out into the to be awesome individuals.  After they moved out my hubby and I moved into a bigger house. 

Odefsey and Complera basically have all the same drugs, except it (Odefsey) replaces disoproxil fumarate (TDF) with tenofovir alafenamide (TAF).  TAF and TDF can directly affect the kidneys and bones, but the dose of TAF is lowered in Odefsey than the TDF in Complera.  Therefore, one can conclude the Odefsey will be a lot softer than Complera when it comes to the long-term effects on the body.  Bone density loss can become a problem or long term effect of being medicated for HIV.  With Odefsey unlike Complera bone density loss is less of a concern, along with toxicity in the kidneys. 
Odefsey has been approved by the FDA for treating HIV infections in persons who have HIV but have suppressed it with antiretroviral (ARV) and those who are 12 years or older with no past ARV therapy history and viral load less than or equal to 100,000 copies/mL. 

I will continue to complete my regime with Complera and then switch over to Odefsey which should happen in about 2 months’ time.  Just remember everyone is different so I’m not sure how my body will react to the change in medication. 

I’ve switched medication 4 times in 9 years.  The first medication gave me Jaundice.  The second medication didn’t do much for me the third medication put me to sleep but with Complera I felt so much better.  I wasn’t tired all the time and since it was one pill a day it was much more convenient for me.  I’m not too worried about switching to medication again because it seems as if science and medicine are always coming up with new ways to make HIV medication a little less harsh on the body because of long term use. 

Anyone want to share their experience please do comment below I would love to hear from you

Justin goes Zip Lining, Parasailing, Encounters Dolphins and Snubaing in Labadee Haiti, Cozumel and Costa Maya Mexico.

Sometimes it is just good to let your hair down.  Being HIV positive doesn’t mean you have to stay at home but it might mean you need to get out of bed and enjoy life.  There were many times, I felt depressed when I was first diagnosed.  Life is a celebration and I say live it to its fullest.  I’m not a party boy or anything but I had to get footage of the parties on the Atlantis Cruise Allure of the Sea ship it was amazing.  We went to Cozumel Mexico and we went Snubaing which was amazing.  Then we went to Costa Maya Mexico where my husband and I did the Dolphin Encounter which was great except they wouldn’t allow me to video tape it, but the experience was well worth it.  The best to me was Labadee, Haiti where I ziplined and parasailed with the hubby.  This vacation was needed and being a HIV positive activist, husband, parent etc. can be stressful so it is important to stop and appreciate all that is around and the experience that I have.  
Labadee, Haiti
(Zip Lining & Parasailing)
Cozumel, Mexico
Costa Maya, Mexico
(Dolphin Encounter)

Justin celebrates life and dances, listens to Jazz, and watches fireworks

Wednesday, February 8, 2017

Justin's HIV Journal and thebody.com make Top 50 HIV Blogs And Websites on the Web

Proud to announce that Justin's HIV Journal has made Top 50 HIV Blogs And Websites on the Web along with thebody.com, Mark S King, Josh Robbins, Aaron Laxton etc., by Feedspot.com

To see the other blogs who made this list go to 

Sunday, February 5, 2017

HIV and Surrogacy A&U Magazine COVER Cleve Jones

Justin—Been a while since we last chatted. I am really interested in surrogacy, as I want a child of my own. As I explained before I am positive, undetectable for many years. Can you advise me where I can go to get this done at an economical cost? Based on my research there are a few organizations that do it, but I would rather get a referral than take what I hear online. Any advice?

For Justin's response to this question  Click here:  http://www.aumag.org/2017/01/20/justin-time-january-2017/

Thursday, February 2, 2017

Justin celebrates life by dancing, listening to jazz and fireworks on the Atlantis Cruise

Sometimes it is just good to let your hair down.  Being HIV positive doesn’t mean you have to stay at home but it might mean you need to get out of bed and enjoy life.  There were many times, I felt depressed when I was first diagnosed.  Life is a celebration and I say live it to its fullest.  I’m not a party boy or anything but I had to get footage of the parties on the Atlantis Cruise Allure of the Sea ship it was amazing 

Thursday, January 5, 2017

Justin's HIV Journal Justin does ifly (Indoor Skydiving) Happy New Year!!

For my birthday, my hubby took me to ifly.  It was awesome!!! I did two sessions it was the best ever.  I’ve been skydiving before, this was amazing.  The hubby decided once a month we will go for some couple time.  2016 was a crazy year for us.  Let us hope 2017 is better.  With ifly and 2017 I plan on soaring to new heights in 2017.  Let us be proactive and not reactive.  Special thank you to the hubby Love you and to the staff at ifly.  With HIV I've learned that I will always aim high and always try to fly over adversity.

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