Thursday, June 7, 2018
HIV Long-Term Survivor's Day - What Is an HIV Long-Term Survivor? Five People With HIV Grapple With the Question
What Is an HIV Long-Term Survivor? Five People With HIV Grapple With the Question
HIV Long-Term Survivor's Day is here! (6/5/2018) I have often wondered whether I am considered a long-term survivor. I've been positive for only 13 years. I personally don't know whether I am considered a long-term survivor, but it has somewhat felt that way. I've buried friends that have denied their own HIV status; because of the stigma they felt from family and the outside world, they let illness consume them instead of facing it head-on. But I was born in 1979 and will never remember the early epidemic and how there were people dying every day of AIDS. I decided to interview five people who have been HIV positive between 10 and 30-plus years to better understand what being a long-term survivor means and to learn about some of the challenges they face or may face.
The people who spoke to me come from different backgrounds, one is an African-American gay man, and two are Caucasian gay men. One is a woman who found out she was positive when she was pregnant, and the other is a heterosexual hemophiliac. I wanted volunteers from a diverse circle to get different perspectives on what they thought a long-term survivor is.
To see the interviews, click here or the link below
Wednesday, May 30, 2018
Justin's Dissertation Gets Published and it's Dr. Justin B Terry-Smith NOW!!
Link to Dissertation either Click Here or the link below
Thursday, May 3, 2018
Monday, April 2, 2018
Grindr, which is a major Queer dating app recently said that they would offer their users a feature that reminded the users to get tested for HIV. But one week after they announced they would offer this feature it was leaked that Grindr was sharing its users’ HIV status and the last date tested with the companies Apptimize and Localytics. Apptimize and Localytics are social marketing companies that basically help apps like Grindr become more popular and attractive.
There is more to worry about. Along with HIV status and last day tested. Information on users such as GPS data, phone ID, and email, an individual’s status could easily be discovered.
Buzzfeed was informed by the Norwegian researcher from the non-profit SINTEF that “The HIV status is linked to all the other information. That’s the main issue,” said Pultier. “I think this is the incompetence of some developers that just send everything, including HIV status.”
Before this incident Grindr yet again had another security flaw. User were able to see who had blocked them. NBC reported that, “The security flaw was identified by Trever Faden, CEO of the property management startup Atlas Lane, after he created a website called C*ckblocked” (the asterisk is part of the name of the service), NBC News reported.
That flaw also allowed users access to others’ location data, which NBC News reported could “lead to increased harassment — especially in places where homosexuality is criminalized.”
Thursday, December 14, 2017
Logging into a dating/hook-up app, like Grindr, is no excuse to log off of your brain or heart. Typos are excusable—stigma is not!
"Logging into a dating/hook-up app, like Grindr, is no excuse to log off of your brain or heart. Typos are excusable—stigma is not!" JUST*IN TIME by Justin B Terry-Smith #HIV #stigma #LanguageMatters
Language matters. It can promote prejudice and misinformation; it shapes our thinking about who and what has value in this world. Logging into a dating/hook-up app, like Grindr, is no excuse to log off of your brain or heart. Typos are excusable—stigma is not!
To take a look please Click Here
Sunday, December 10, 2017
When Justin’s HIV Journal was on display at the Brooklyn Museum there was a discussion panel afterwards of Activist. It allowed me to see activist from early in the HIV epidemic and present-day activist. The one commonality that we all had in common was the camera. We documented our lives and other people’s lives that were affect or infected with HIV. It amazed me on how far activism has come but it also amazes me on what is coming next from the next generation. Sometimes, I wonder will the generation after me understand what we’ve done to help in the fight against HIV. I know that the generation before me probably thought the same thing. Well, I say to them I was there, I listened, and I’m here now continuing your work. The work that laid the ground for other like me to be able to do what we do. I thank you all on this World AIDS Day
Justin B. Terry-Smith on the impact of technology and social media with activism
Excerpt: “As far as me growing up and going to college I kind of left it by the wayside but I always really had a passion for journalism in the media and so being a writer today really did help me to be able to be open about what I have. To be open about who I am. But I will say that I have two sons they are 20 and 18. And I will say that I LOVE social media... It does allow them to be open and to explore and explain their feelings to the outside world. It does allow us to be able to say, 'here's an important cause'. Here's an avenue for you to feel passionate about, go explore that." - Justin B. Terry-Smith
Justin B. Terry-Smith on making private testimony public
Excerpt: “Giving a testimony of what was going on with me was able to manifest itself and have other people say, 'well this is happening with me too'. Having people comment and send me emails about that made me want to do more and more. And broadened my horizon like my husband and I are adopting this kid and another kid. I'm still doing this and thinking of what it means to be positive. And a lot of people from the older generations would say well, we never thought that would even be a possibility.” - Justin B. Terry-Smith